Posts filed under ‘General’

New Site Feature!

Today, I launched a new feature to Caring for Crohn’s- a listing of IBD specialists across the country. There is now a tab on the menu on the top of the page that reads “IBD Doctors“. If you click on that, you can view doctor listings by each state.

Some states do not have doctors listed- that is because I used U.S. News & World Reports rankings of Top Doctors and there weren’t any listed for that state. However, that doesn’t mean there aren’t any great IBD doctors in that state!

If you know of any that aren’t listed, please email me at caringforcrohns@gmail.com.

There is nothing more important that having a doctor who is extremely knowledgeable in IBD and is helpful and listens to your concerns. I hope you find this new page helpful!

December 17, 2012 at 2:01 pm Leave a comment

A state in mourning

Tonight’s post will be short and unrelated to IBD.

Today, a horrific thing happened in my home state of Connecticut. This morning, a disturbed young man opened fire in an elementary school, killing 20 children and six adults. We don’t know why it happened or what caused him to kill these young children.

There are no words to adequately express how I feel about today’s shooting aside from saying that I am saddened by the loss and maddened by what occurred. I am not a mother so I cannot relate to the feeling of having a child. However, I do know that there is no worse feeling than losing a loved one, especially to circumstances beyond your control. I can only imagine how much worse it must feel to loose a young child to the insane actions of a madman.

My heart goes out to the families of those who died in today’s Newtown shooting. It aches for the children who died and also for their classmates who, at such a young age, witnessed such a gruesome sight. And my heart aches for the principal who died trying to protect her students.

I ask you all tonight to pray for the families of those who died in the shooting. Pray for their comfort, assistance, and the ability to cope with such massive grief. I ask you to pray for all the residents of the town of Newtown who had their picturesque New England town turned into a nightmare. And I ask you to pray for all the residents in Connecticut who are so saddened and grief stricken by this awful act of violence.

Tonight I will leave you with a snippet of President Obama’s remarks on the shooting.

So our hearts are broken today — for the parents and grandparents, sisters and brothers of these little children, and for the families of the adults who were lost. Our hearts are broken for the parents of the survivors as well, for as blessed as they are to have their children home tonight, they know that their children’s innocence has been torn away from them too early, and there are no words that will ease their pain.

As a country, we have been through this too many times. Whether it’s an elementary school in Newtown, or a shopping mall in Oregon, or a temple in Wisconsin, or a movie theater in Aurora, or a street corner in Chicago — these neighborhoods are our neighborhoods, and these children are our children. And we’re going to have to come together and take meaningful action to prevent more tragedies like this, regardless of the politics.

You can read the full text of the President’s remarks here.

December 14, 2012 at 10:49 pm Leave a comment

My Belated Gratitude Challenge

I found a blog recently written by a Crohnie called My Journey with Crohn’s. Sarah, the site’s author, recently did a week-long series on gratitude. I’m a little bummed that I didn’t find her blog sooner otherwise I totally would have participated.

Every day for one week, she posted five things that she is grateful for (in the spirit of Thanksgiving). On the last day, she also posted what some of her followers are grateful for. It’s such a great idea, given how unsettling and upsetting Crohn’s and UC can be, to think about gratitude and give thanks to the things that are good in your life.

That being said, while I won’t list 35 things that I am grateful for, I will do a short list here in the spirit of her series from last week.

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November 26, 2012 at 4:01 pm Leave a comment

Hurricane (or any storm) prep for IBD

If you’re like me, the past few days have been a haze of bad weather and destruction. Living on the eastern seaboard, in the past year we’ve had three major storms- two hurricanes and one blizzard. Each storm knocked us out of commission for days with no power and damage.

We were lucky- we neither lost power nor had any damage. But others weren’t as lucky. My heart goes out to all those who had their homes wrecked and ravaged by Hurricane Sandy.

That brings me to today’s short post- preparing for a storm with IBD in mind.

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November 1, 2012 at 5:53 pm Leave a comment

Laughing your ass off

The great thing about having Crohn’s or UC is that there is no shortage of jokes you can make about poop, farting, burping, gas, and all of the other immature slang terms that can be used to reference bodily excretions and noises from the rear end.

That being said, its no surprise that one comedian has embraced that. Ben Morrison has taken his battle with Crohn’s and turned it into a comedy show aptly named Pain in the Butt.

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October 25, 2012 at 5:43 pm Leave a comment

Join The Fight Against IBD: Your first year with IBD

Join The Fight Against IBD: Your first year with IBD

October 25, 2012 at 1:32 pm Leave a comment

Would you?

If you could give anybody your disease so they could understand what you go through, what it really feels like emotionally and physically and if they had to endure the very worst of the disease for a month would you do it? Why or why not?

October 24, 2012 at 4:59 pm Leave a comment

My best friend, a new Crohn’s patient

Last week, my best friend was diagnosed with Crohn’s Disease.

My heart goes out to her- she lives in upstate New York several hours from her family. She sent me a text message to tell me the diagnosis and when I called her, she had been at the doctor alone except for a friend picking her up from the colonoscopy. She knows what Dan and I have gone through over the past six years. She’s also a nurse, which helps her have a clinical understanding of the disease. But not much can prepare you for the diagnosis of Crohn’s Disease or UC.

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October 23, 2012 at 6:04 pm 1 comment

Introspective Tuesday

I’m feeling introspective today more so than usual. I was playing around on Facebook when a new blog post popped up in my news feed from a high school friend’s blog, Before and Afro. Today’s entry title – MAJOR LIFE UPDATE. Between the wording and the all caps, I was intrigued to see what she was announcing. (Note: her past blog entries have been about her adventures as a white girl rocking an Afro wig, it’s pretty awesome).

So I logged onto her blog to read the new entry to find that she quit her job to figure out what she wants to do with her life and blog full-time.

To say that I am jealous is an understatement.

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October 16, 2012 at 6:32 pm Leave a comment

There’s an app for that!

Sorry for the lack of posts recently- I was on a family trip to Ohio and didn’t have much time for blogging. But I am back and with lots of ideas for new entries.

PS- if you haven’t done so already, please like Caring for Crohn’s on Facebook and follow me on Twitter @caringforcrohns!

That brings us to today’s entry- iPhone apps for Crohn’s and UC patients!

I was reading an article recently about all types of apps for IBD patients- from restroom locators to symptom diaries to some funny ones also. There are tons out there and they are definitely useful for those out there who are living with these diseases on a daily basis.

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September 6, 2012 at 5:34 pm Leave a comment

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The Caged Bird Still Sings

Striving to be content with the life I have been given, instead of the life I had imagined

Brian Greenberg

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