Posts tagged ‘bowel resection’
Today, May 19, marks the observance of World IBD Day, a day led by patient organizations across four continents to raise awareness and educate the public about inflammatory bowel diseases. Around the world, more than 5 million people live with Crohn’s disease and ulcerative colitis, two debilitating digestive diseases that have detrimental effects on patients physically, emotionally, financially, and more. I know that my blog has been stagnant for months, but I figured today was a great day to return to it.
On World IBD Day last year, I talked about feeling defeated by the lack of progress being made for IBD patients. I was feeling pessimistic after the passing of a young IBD patient and a segment on a major news station that confused IBD with IBS. After a lot of thinking, I decided this year I wanted to be more optimistic.
I just returned from spending four days in Washington, D.C. as part of the IBD Social Circle, the online movement dedicated to bridging communications gaps and inspiring and educating the IBD community. While there, I got to spend time with some incredible IBD activists, like Ally Bain (the girl behind Ally’s Law/Restroom Access Act), Laura of Mangia Paleo, Brian of the Intense Intestines Foundation, Stephanie of The Stolen Colon, and so many more. I also was provided the opportunity to attend Digestive Disease Week, the world’s largest gathering of physicians and researchers in gastroenterology, hepatology, endoscopy, and gastrointestinal surgery. After spending a weekend surrounded by strong, passionate advocates and bloggers talking about Crohn’s disease and ulcerative colitis, I decided that this year’s post would be dedicated to thanks.
I can’t believe we are almost at the end of the alphabet! There will be one or two more posts after this one and then my glossary of Crohn’s & Ulcerative Colitis will be completed. But before we get to that point, we have a few more letters to get through.
Tonight, we tackle R & S.
I might be crazy but every time Dan says he has a stomach ache (which is pretty frequently), I am reminded of the dreadful night last year when he woke me at 2A.M. to go to the emergency room. That night we found out he had a blockage. Now, every time he has pain in the same area, I worry it’s another one.
I know the fear is irrational since he had surgery last year to remove the narrowing that caused the blockage (will go into that in a later post) and he has a wide open passage. But it still scares me.
Anyone else out there worry like that?