Posts tagged ‘Crohn’s and Colitis Awareness Week’
Today is the last day of Crohn’s and Colitis Awareness Week and, as I look back over all the stories that have been shared over the past seven days, I am in awe of how strong the Crohn’s and ulcerative colitis patients in my life are. Each story is unique but what they all have in common is that they refuse to let their disease run their life, no matter how difficult living with the diseases can be.
On the last day of this important awareness week, #ThisIsIBD story comes from Craig. Craig’s story is pretty incredible- diagnosed with both Crohn’s disease and Celiac Disease and overcame odds to become a professional arena football kicker and a two-time Guinness World Record holder.
Make sure to check out his full story after the jump!
Today’s #ThisIsIBD stories come from two incredible people- Rosanne and Sean. Rosanne and I met through our volunteer work with the Greater NYC Chapter of the Crohn’s & Colitis Foundation of America. She’s a great advocate and a Disney blogger in her spare time.
Sean is the founder of Crohnology, a social network for patients with Crohn’s disease and ulcerative colitis. Through Crohnology, a newly diagnosed patient can find others with the same condition in his/her city, learn about the treatments are working for patients, and record his/her progress as he/she tries new treatments, ultimately to get better and help others.
Today, my friend Ben shares his #ThisIsIBD story. Ben married my good college friend several years ago and this past summer, ran the Jamestown Half Marathon with us, his first race ever. Way to go!
Ben, 29, Crohn’s disease
During the fall semester of my senior year of college, I was studying abroad in South America. After about a month, I started having severe stomach pain and diarrhea. I thought that my body was just getting used to the Chilean food and water. In addition, one of my brothers had been in a severe car accident that caused me to fly home to Maryland for a week, so I thought that stress was a factor as well. However, the symptoms did not abate, and I lost close to 50 pounds. Stubbornly, I did not see a doctor until I returned home for good in the winter, and when I did I was diagnosed with Crohn’s disease.
At first my symptoms were debilitating and I felt very unlike my usual self. However, after several months, I was able to get back to a normal weight and get my symptoms under control. Nevertheless, several of my other friends have not been so lucky. Having friends who have gone through surgery and have to endure monthly infusions of medication shows me how lucky I am compared to others.
For me, my Crohn’s disease has been a great motivator. I take several pills each day to keep my symptoms in check and get a bi-monthly blood test, but as long as I eat healthy foods and exercise regularly, Crohn’s remains a small part of my life. This past summer, I trained for and completed the Jamestown Half Marathon in Rhode Island as part of Team Challenge New England, and raised several thousand dollars for IBD research. This was the culmination of months of training and accomplishing something that I never thought I’d be able to do.
I still have bad days symptom-wise occasionally, but my Crohn’s disease does not define who I am. Crohn’s/IBD means a commitment to staying healthy and showing that life’s challenges can be overcome.
Today’s #ThisIsIBD story is from Laura. Laura is one of my good friends from Team Challenge who, despite having Crohn’s disease, is a speed demon half-marathoner many times over (she ran the Jamestown Half Marathon last year in 1:41).
Laura, 30, Crohn’s disease
Jeffrey, 41, Crohn’s disease
I was diagnosed with Crohn’s disease in the 1980’s and went through years of being sick but just wanting to feel better and live my life. I didn’t know much about the disease, and, due to a lack of resources and motivation, I didn’t see any point in learning more about my disease. I spent years ignorant of what I had.
In 2011, my life with Crohn’s disease changed, and so did my goals. My father-in-law, who lived with ulcerative colitis and had an ostomy, passed away due to complications from his disease. I looked up to him in my battle with IBD and he was an inspiration in how he lived his life. I also went into my worst Crohn’s disease flare that same year. I started going through depression and felt like my life was going downhill real fast.
Three years later, my life has completely changed. Having IBD has built up my character and confidence. Thirty years ago, I didn’t fully understand Crohn’s disease and wouldn’t talk to anyone about it. Now I am well educated about my disease, research and the new treatments that are being developed. I run a support group that helps other find their voice to speak up. I feel like I have been quiet with my disease for way to long and now that it has helped define who I am, I will never keep quiet about it again.
When I sought out stories for my recent Huffington Post piece to illustrate life with IBD, I received an incredible amount of personal stories from people living with Crohn’s disease and ulcerative colitis, too many to fit into the 1,000 word limit I had for my piece. In observance of Crohn’s and Colitis Awareness Week, I am going to share the additional stories on my blog throughout the week.
First up, my friend Andrea from The Great Bowel Movement.
Happy Crohn’s and Colitis Awareness Week everyone!
Today marks the beginning of Crohn’s and Colitis Awareness Week 2013 and more than ever, I can’t stress the importance of this week for raising awareness and educating others about inflammatory bowel diseases.
Before Dan was diagnosed, I didn’t know much about IBD. In fact I was one of those people who thought IBD and IBS were one in the same (I now know that they are most definitely not).
In the almost seven years since Dan was first diagnosed with Crohn’s disease, I have learned more about these debilitating diseases than I ever imagined I would. I have witnessed the good and the bad- colonoscopies, hospitalizations, surgeries, medications, tens of thousands of dollars in medical bills- you name it, Dan and I have been through it.
I have also been able to raise awareness and educate others who knew nothing about the disease learn about why Crohn’s disease and ulcerative colitis are not just pooping diseases. Through Team Challenge and Take Steps, over the past three years Dan and I raised over $21,000 for research and education of Crohn’s disease and ulcerative colitis.
But I’ve also had the pleasure of meeting incredible people who are battling these diseases and have become my second inspiration for raising awareness.