Posts tagged ‘Chronic Illness’
Today, May 19, marks the observance of World IBD Day, a day led by patient organizations across four continents to raise awareness and educate the public about inflammatory bowel diseases. Around the world, more than 5 million people live with Crohn’s disease and ulcerative colitis, two debilitating digestive diseases that have detrimental effects on patients physically, emotionally, financially, and more. I know that my blog has been stagnant for months, but I figured today was a great day to return to it.
On World IBD Day last year, I talked about feeling defeated by the lack of progress being made for IBD patients. I was feeling pessimistic after the passing of a young IBD patient and a segment on a major news station that confused IBD with IBS. After a lot of thinking, I decided this year I wanted to be more optimistic.
I just returned from spending four days in Washington, D.C. as part of the IBD Social Circle, the online movement dedicated to bridging communications gaps and inspiring and educating the IBD community. While there, I got to spend time with some incredible IBD activists, like Ally Bain (the girl behind Ally’s Law/Restroom Access Act), Laura of Mangia Paleo, Brian of the Intense Intestines Foundation, Stephanie of The Stolen Colon, and so many more. I also was provided the opportunity to attend Digestive Disease Week, the world’s largest gathering of physicians and researchers in gastroenterology, hepatology, endoscopy, and gastrointestinal surgery. After spending a weekend surrounded by strong, passionate advocates and bloggers talking about Crohn’s disease and ulcerative colitis, I decided that this year’s post would be dedicated to thanks.
Disclaimer: This post addresses a topic that is sensitive for many people- religion. I want to make sure that people know I am in no way trying to advocate for or against any specific religion or trying to preach to you that your beliefs are wrong. Instead, I am just expressing my frustrations with my current relationship to Judaism.
When I was younger, I used to have nightmares during Yom Kippur.
I was taught in Hebrew School that on this day, G-d decides if you live or die in the next year. I took this so literally when I was young, praying to be inscribed into the book of life, actually afraid that I might die in the coming year.
I grew out of that phase quickly but from it I took a genuine interest and appreciation for religion.