Resources
There are many fantastic resources on the web for IBD patients. Here are links to some of those:
Crohn’s & Colitis Foundation of America
The Crohn’s and Colitis Foundation of America (CCFA) is a non-profit, volunteer-driven organization dedicated to finding the cures for Crohn’s Disease and ulcerative colitis. It was founded in 1967 by Irwin M. and Suzanne Rosenthal, William D. and Shelby Modell, and Henry D. Janowitz, M.D.
Crohn’s & Colitis Foundation of Canada
The Crohn’s and Colitis Foundation of Canada (CCFC) believes that a cure will be found for Crohn’s disease and ulcerative colitis. To realize this, the CCFC is committed, first and foremost, to raise increasing funds for medical research.
The CCFC also believes it is important to make all individuals with inflammatory bowel disease (IBD) aware of the Foundation, and educate these individuals, their families, health professionals and the general public about these diseases.
Crohn’s and Colitis UK aims to improve life for everyone affected by Inflammatory Bowel Disease (IBD), the most common forms being Crohn’s Disease and Ulcerative Colitis. Together these conditions affect about 250,000 people in the United Kingdom.
The charity brings together people of all ages who have been diagnosed with IBD, their families and the health professionals involved in their care. We welcome support from anyone who would like to help us in our work, whether as a member, volunteer or by raising funds. We hope that you will find the information you are looking for within our website. If not, please contact us.
The IBD Support Foundation, based in Los Angeles, California, focuses on providing comprehensive, patient-centered psychosocial care. Under the direction of Marci Reiss, LCSW, the Foundation strives to provide leading psychosocial support and education to patients with Crohn’s Disease and Ulcerative Colitis and their families.
IBD impacts the whole family, not just the patient. At the IBD Support Foundation, we recognize the importance of strengthening the family unit while addressing the psychological, social, and emotional needs of each patient. This is done through various programs including individual and family counseling, hospital visitation programs, peer mentors, school advocacy, and psychoeducational support groups for IBD patients and their families.
The Pediatric IBD Foundation is committed to discovering revolutionary treatments through research for children with inflammatory bowel disease including Crohn’s disease and ulcerative colitis. As a 501(c)(3) nonprofit corporation, the Foundation coordinates, facilitates, augments and finances activities of an international consortium of physicians and scientists.
The Foundation for Clinical Research in Inflammatory Bowel Disease
This site is dedicated to providing people with ulcerative colitis and Crohn’s disease and their families with accurate information about these inflammatory bowel diseases (IBD) and their treatments.
Mayo Clinic is a leading center for diagnosing and treating inflammatory bowel disease (IBD). Each year, Mayo Clinic doctors treat more than 5,000 adults and children for IBD.
Mayo’s specialized IBD clinics promote collaboration among gastroenterologists, radiologists, pathologists and nutritional care specialists to ensure that every person receives the most comprehensive, supportive and experienced care possible.
MedlinePlus is a service of the National Library of Medicine and the National Institutes of Health.
National Institute of Diabetes and Digestive and Kidney Diseases
The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) conducts and supports basic and clinical research on many of the most serious diseases affecting public health.
The Center for Inflammatory Bowel Disease at Mount Sinai Medical Center
Mount Sinai digestive disease specialists care for more patients with inflammatory bowel disease (IBD) than any other medical center in the country. Digestive disease specialists from throughout the New York tri-state area send their most challenging cases to our IBD physicians. …
Mount Sinai IBD specialists are constantly conducting clinical trials to develop or test advanced treatments. Patients eligible for these studies might receive potentially groundbreaking new therapies and medications before they are available anywhere else in the world.
The Children’s IBD Center at Mount Sinai
Children with IBD have specific needs that require a team approach to management. Nutrition, growth, body image and dealing with a chronic illness are among the special concerns of families and patients. By creating a Center for IBD, we are able to offer a multifaceted approach to patient care. The center is open on specific afternoons and evenings to encourage participation by the whole family and allow patients to gather together to share ideas. Lectures, discussions and support groups are open to all families. The entire team of healthcare professionals participates in the care so that outcomes are optimized.
The Children’s Hospital of Philadelphia’s Center for Pediatric Inflammatory Bowel Disease
The Center for Pediatric Inflammatory Bowel Disease at The Children’s Hospital of Philadelphia is one of the largest centers of its kind in the United States. We care for approximately 1,400 children a year with IBD, who come here from all over the world.
The Pediatric Inflammatory Bowel Disease (IBD) Program provides care for children and young adults suffering from inflammatory bowel diseases such as Crohn’s disease, ulcerative colitis and other intestinal disorders. The onset of IBD typically occurs in adolescence, during a particularly vulnerable time of life, and may take an emotional, developmental, and physical toll on children.
Pediatric Inflammatory Bowel Disease Center at Cedars-Sinai
The Pediatric IBD Center is a facility dedicated to healing children quickly. Children from all over the world visit the Center for both the diagnosis and treatment of chronic, sometimes life-threatening diseases. The center is designed for patient and family comfort and ensures parents that their child will receive the highest quality care from world renowned leaders in the field. The Pediatric IBD Center uses a multidisciplinary team approach consisting of physicians, nurses, researchers, nutritionists and social workers who focus on individualized medicine. The center is patient-focused and provides high quality compassionate care to our patients. Currently, our center has cared for over 1000 children, adolescents and young adults with IBD.
The University of Chicago IBD Center
The University of Chicago Inflammatory Disease Center has long been recognized by our peers and colleagues around the world as one of the leading centers for inflammatory bowel disease (IBD). This website includes the diverse components of our center and our ongoing efforts to achieve our mission of outstanding patient care, cutting-edge teaching and education, and innovative research.
American College of Gastroenterology
The mission of the American College of Gastroenterology shall be to advance the medical treatment and scientific study of gastrointestinal disorders. The College will strive to serve the evolving needs of physicians in the delivery of high quality scientific, humanistic, clinical, ethical, and cost-effective health care to gastroenterology patients.
Gastroenterology & Clinical Gastroenterology and Hepatology IBD Resource Center
Pioneering research from the AGA journals on the biology and clinical management of IBD.
This website is sponsored by Abbott Laboratories, the pharmaceutical company that produces Humira. The site provides resources to Crohn’s patients about the disease and tools for living with it.
Crohn’s disease information, support, tools, and tips for those living with Crohn’s disease from UCB, the pharmaceutical company that produces Cimzia.
A resources site from the pharmaceutical company Janssen Biotech, the producer of Remicade.
Crohn’s Disease Support Network
CDSN is a FREE NON PROFIT Support Network – created on September 24th, 2009 and is ran by members with Crohn’s Disease. This network’s goal is to help people living with Crohn’s Disease, along with the families and friends of Crohn’s patients. Family members and friends need support also because it is never easy to see someone you care about suffer.
This website is designed for patients with inflammatory bowel disease (IBD) to find the latest information and receive advice about IBD from medical experts. You’ll find video discussions between experts in the field, interviews with an IBD patient, slideshows, downloads, and animations on topics ranging from what causes IBD (both Crohn’s disease and ulcerative colitis) to the medications and surgeries used to treat IBD to how IBD can be managed to achieve the best quality of life.
IBD U (IBD University) is a resource portal with tips and info to help you as you transition from pediatric care to adult care, for teens with ulcerative colitis or Crohn’s Disease. Click through Education, Lifestyle, Healthcare and Self Help for more!
GIKids is the patient outreach and education effort of NASPGHAN – the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition – an organization of more than 1400 pediatric gastroenterologists, predominantly in 46 states, the District of Columbia, Puerto Rico, Mexico and 8 provinces in Canada.
We know it’s difficult to live with Crohn’s disease or ulcerative colitis as a teen. You are not alone! We created this site so you can learn and connect with other teens who share their stories and experiences
Caring for Crohn's & UC 
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