My best friend, a new Crohn’s patient

October 23, 2012 at 6:04 pm 1 comment

Last week, my best friend was diagnosed with Crohn’s Disease.

My heart goes out to her- she lives in upstate New York several hours from her family. She sent me a text message to tell me the diagnosis and when I called her, she had been at the doctor alone except for a friend picking her up from the colonoscopy. She knows what Dan and I have gone through over the past six years. She’s also a nurse, which helps her have a clinical understanding of the disease. But not much can prepare you for the diagnosis of Crohn’s Disease or UC.

I can’t imagine how she must be feeling. I remember when Dan was diagnosed six years ago. He was still in college and his mom took him to the doctor for his colonoscopy and I was at his parent’s house when he got him (this was after we were only dating a few weeks). Dan isn’t one to get very emotional about things like this but you could tell he was upset. Not having the disease, it’s hard for me to sympathize but I can only imagine how awful it must be to feel crappy all the time.

So today’s post is advice to my friend, a new Crohnie. If you have anything advice for a new Crohn’s patient, please add it below!

  • Keep your head high and breathe through the pain- it passes eventually
  • Keep track of what you eat- if it triggers cramps, don’t eat it!
  • Read a lot about the disease and go on forums to connect with others with the disease
  • Try and explain it to your friends and loved ones but don’t get mad if they don’t understand it right away
  • Get pissed off that you have the disease- it sucks and its unfair
  • Be proactive about your care- if something doesn’t feel right, go see your doctor as soon as possible, don’t put it off
  • Make a joke out of as much as possible- it’s the only thing that’s gotten us through the tough times
Advertisements

Entry filed under: General.

Introspective Tuesday Would you?

1 Comment Add your own

  • […] A few months ago, my best friend Julia was diagnosed with Crohn’s disease. The diagnosis, like it is for so many people, has been difficult for her to wrap her mind around. I remember how hard it was for Dan when he was first diagnosed- understanding the disease, getting used to living with it, finding trigger foods, getting on the right medications, having tons of procedures, etc. But Julia has handled it with grace, no matter how down she feels. […]

    Reply

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Trackback this post  |  Subscribe to the comments via RSS Feed


Follow me on Twitter

Enter your email address to follow this blog and receive notifications of new posts by email.

Recent Posts

Categories

Blog Stats

  • 68,197 views

The Caged Bird Still Sings

Striving to be content with the life I have been given, instead of the life I had imagined

The Stolen Colon | Living beautifully with an ostomy

Stephanie Hughes | This blog is my way of connecting with the world about living with an ostomy and Crohn's disease.

Brian Greenberg

Documenting the life of an IBDer, Non-profit Founder/President, Financial Advisor and Triathlete.

A Guy With Crohn's

Just a guy living life with Crohn's Disease.

bathroomangelsblogsandvlogs

A fine WordPress.com site

Living With Crohn's & Colitis

A Comprehensive Naturopathic Guide for Complete Digestive Wellness

Caring for Crohn's & UC

Caring for a loved one with Crohn's Disease & Ulcerative Colitis

The WordPress.com Blog

The latest news on WordPress.com and the WordPress community.

%d bloggers like this: