Posts filed under ‘General’

Oh, Hey.: List of things that sucks about having IBD

Oh, Hey.: List of things that sucks about having IBD

August 27, 2012 at 4:45 pm Leave a comment

Question of the Day

The Crohn’s and Colitis Foundation of America posted an interesting question on their Facebook wall today and I wanted to share it with you and see what you thought.

Do you find that making friends is more difficult with Crohn’s Disease/Ulcerative Colitis or not so much?

August 20, 2012 at 4:13 pm Leave a comment

Crohn’s Sucks: The Last Thing I Do On This Earth

Crohn’s Sucks: The Last Thing I Do On This Earth

August 10, 2012 at 5:52 pm Leave a comment

Through a G.I. Girl’s Eyes: Mouth Problems & Prednisone

Through a G.I. Girl’s Eyes: Mouth Problems & Prednisone

August 1, 2012 at 1:30 pm Leave a comment

Bathroom Talk

Sorry for the delay in posting! We were away this weekend seeing our niece and the blog kind of got away from me. However, while we were away I got thinking…

I don’t know if we are just strange or what but poop and Dan’s bathroom habits are a routine part of conversation, no matter the time of day or what we are doing.

At my in-laws this weekend, we were all eating and Dan disappeared. Different people asked me on different occasions where he was and each time, it got us on the topic of Dan pooping. Now, for most people this might be gross, but for people with Crohn’s and Colitis, this is totally normal. They spend more time than normal in the bathroom than other people, so it makes sense that those with it talk about it more than others.

We also talk a lot while he is in the bathroom. I ask him how he’s doing and show him funny things on the computer. Or if he has his phone, I text him while he’s in there to make sure everything is okay.

Does anyone else find that, ever since they received their Crohn’s or Colitis diagnosis, they talk a lot about their bathroom habits or poop without shame? Do you think it’s weird to do or part of life?

July 23, 2012 at 9:48 pm Leave a comment

Inflamed and Untamed: Do IBD commercials, news reports, etc. make you as mad as they make me? Let me rant the ways!

Inflamed and Untamed: Do IBD commercials, news reports, etc. make you as mad as they make me? Let me rant the ways!

July 17, 2012 at 11:50 pm Leave a comment

Turning lemons into lemonade

I grew up turning everything into a joke.

For example, when my mom was diagnosed with cancer in 2006 and lost her hair, we bought her a Du-rag and tried to get her to wear a Bob Ross Afro wig.

It’s no surprise then that Dan and I try to take on Crohn’s with a light heart and lots of jokes. It’s definitely hard at times to find the humor in our situation when there is so much bad (hospitals, medication, medical bills, etc.) but we do our best.

The three times Dan has been hospitalized, I have taken photos to chronicle the experiences. While it might seem a bit strange, it helps us to keep our moods up. We also make a lot of puns related to poop and the other things that go hand in hand with Crohn’s Disease and Ulcerative Colitis.

For the last three years, we’ve participated in CCFA’s Take Steps Be Heard walk and because of our jokes, it’s only appropriate that our team name is Shits & Giggles. This past year Dan was the honored hero at our walk AND we were the first place fundraiser on the day of the walk!

If I could give one piece of advice to all those either suffering from or taking care of someone with Crohn’s and Colitis, keep your spirits up and try to laugh. It’ll help make the bad times be a little brighter.

What do you do to make Crohn’s not hurt so much?

July 17, 2012 at 12:32 am Leave a comment

Things to do during bathroom breaks

If you take care of someone with Crohn’s or Colitis, you know that going out to eat is always an adventure. Between finding something to eat for those on restrictive diets (low fiber, low residue, dairy free, gluten free, the diet restrictions are endless…) and timing the all important bathroom trips, going out to eat takes some planning. Since Dan’s surgery in 2011, we haven’t had to deal with the restrictive diet issue much (thank G-d because that was a huge pain in the butt, but I’ll elaborate more on that at a later date) but bathroom trips are part of our regular trips out to eat.


July 8, 2012 at 2:50 am Leave a comment

Talking about shit

I have tried blogging more than once in my life and it usually ends up the same way- I get really into it for the first few days and then get bored and give up. But I really want to give this a go and make it work this time around.

For the past almost six years, I have been a caretaker for someone with Crohn’s Disease. In 2007, a couple of weeks after we started dating and after my mom started chemotherapy for non-Hodgkin’s Lymphoma, Dan (my now husband) was diagnosed with Crohn’s Disease. Crohn’s, for those who don’t know, is an inflammatory bowel disease. Basically, it means that your gastrointestinal tract is inflamed and you have horrible cramping, diarrhea, weight loss, and all sorts of other fun things.

At age 20 (when we first met), most people would run from having a life with someone with such a serious, debilitating disease. Your early 20’s is stereotypically about being fun and care-free. But, as my friends would say, I am not most people as I have my own issues that are on par with Crohn’s for Dan to deal with. I have been with Dan through four colonoscopies (I can tell by the number of stuffed animals he has from me, one for each one), three hospitalizations, and one surgery, not to count hundreds of doctors visits and thousands of dollars in medical bills.


June 19, 2012 at 1:33 am 1 comment

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The Caged Bird Still Sings

Striving to be content with the life I have been given, instead of the life I had imagined

Brian Greenberg

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