Health Activist Writer’s Month Challenge Day 4

April 4, 2013 at 6:59 pm Leave a comment

Create a “care page” – a list of your best resources that someone who is newly diagnosed could go to when starting to advocate for themselves or a loved one. Remember to include sites that lead to successful self-advocacy!

This is definitely an interesting post for me to write. When Dan was first diagnosed six years ago, I didn’t look for resources- I was just his girlfriend and the bulk of his care wasn’t going to be my responsibility. I lackadaisically went about caring for him and just assumed that how he was feeling was normal for the diseases. Of course I was wrong and, in retrospect, I probably should have taken the initiative to look at resources and different things I could do to help him cope with the disease.

That being said, here is a list of the best resources that have helped me in the three and a half years that we’ve been married:

Crohn’s and Colitis Foundation of America

Mayo Clinic

Advocacy for Patients with Chronic Illness

Crohn’s & Me


Crohn’s & Colitis Diet Guide

Family Medical Leave Act

Social Security Disability


Entry filed under: Caregiving, General Disease.

Health Activist Writer’s Month Challenge Day 3 Birthright Israel Trip for People with IBD!

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