Posts tagged ‘CCFA’

The ABC’s of Crohn’s & UC: “L”

My heart is still heavy from the Newtown shooting in my home state but I wanted to go back to the real reason why I blog: to educate people and raise awareness about Crohn’s and Ulcerative Colitis.

Tonight’s post is the next installment in the ABC’s of Crohn’s and UC series- the letter L.

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December 16, 2012 at 8:36 pm 1 comment

Huffington Post: Why I Celebrated Crohn’s & Colitis Awareness Week

In the excitement of Crohn’s & Colitis Awareness Week and the #PurpleChallenge, I completely forgot to share with you my exciting news- I wrote another piece on Crohn’s for HuffingtonPost.com!

In case you missed it, in August, I wrote a piece for the Huffington Post on what it’s like to be a caretaker for someone with Crohn’s Disease. After writing that and the great feedback I got from those who read it, I knew I wanted to write another piece sometime soon. After racking my brain I realized my next topic was right in front of me- why I celebrate Crohn’s & Colitis Awareness Week.

Here’s an excerpt of my post:

Six years ago, I had not heard of Crohn’s disease or ulcerative colitis. I lived in a world where I was blissfully unaware of inflammatory bowel diseases, where the debilitating symptoms didn’t impact my life. Then I met my now-husband Dan, and everything changed.

Dan was diagnosed with Crohn’s disease just two weeks after we started dating in 2007. Now, six years later, we have been through the gamut with the disease. He’s been on three different medications, with one of them making it nearly impossible for him to function because of severe fatigue. Now, instead of taking oral medication, Dan receives an IV infusion every six weeks at the doctor’s office. He’s had three different gastroenterologists. He’s been hospitalized for a post-colonoscopy infection and an intestinal blockage. Most recently, he had part of his small intestines removed in order to treat the disease.

Check out the full post here.

December 12, 2012 at 10:27 am 3 comments

The ABC’s of Crohn’s & UC: “J” & “K”

It’s been a few weeks since I did an installation in my ABC’s of Crohn’s & UC series. With other topics arising and Crohn’s & Colitis Awareness Week occurring, it’s fallen off my radar. So here is the next installation, and it will be a short one: J and K.

Jejunoileitis: One of the types of Crohn’s Disease. Jejunoileitis affects the jejunum (see below). Symptoms include cramps after meals, fistulas, diarrhea, and abdominal pain. Kind of sounds like all the other types of Crohn’s.

Jejunum: The upper half of the small intestines.

J-Pouch: One name for an ileo-anal pouch. The J-Pouch is an internal reservoir where the rectum would be. A J-Pouch is traditionally done through a multi-part surgery. The first surgery involves the removal of the large intestines and rectum and the fashioning of the pouch. At the end of the first surgery, the patient is given a temporary ileostomy in order to give the pouch time to heal. After a period of time (typically 6-12 weeks), a second surgery is performed known as the “take down” in which the ileostomy is reversed.

 

Kidney Stones: One of the most common kidney complications in Crohn’s patients. According to CCFA, kidney stones are common in patients who has Crohn’s in the small intestines because of fat malabsorption. You are at a higher risk for kidney stones if you’ve had a number of bowel resections because you are more prone to dehydration. Symptoms of kidney stones include sharp pain (particularly in your lower back), nausea, vomiting, and blood in the urine. Treatment calls for an increased fluid intake and a diet that is rich in juices and vegetables. If you are unable to pass the kidney stones on your own, you may have to have them removed which is through a simple procedure.

Kock Pouch: A Kock Pouch is an internal pouch formed by the terminal ileum after a colectomy. The pouch has a large volume so that feces can be stored temporarily without the need for a stoma bag. A Kock Pouch may be created if the patient cannot have an ileo-anal pouch or who develop incontinence after an ileo-anal pouch.

December 9, 2012 at 5:04 pm 3 comments

Carrie Johnson: three time Olympian & Crohn’s patient

I was approached earlier this week by Crohn’s & Me to see if I was interested in interviewing any national advocates for Crohn’s and Colitis Awareness Week. I jumped at the opportunity. But never in my wildest dreams did I think I would be interviewing three-time Olympic sprint kayaker Carrie Johnson.

I wrote briefly about Carrie prior to the Olympics. However, there is so much more to her story that I learned after talking with her for 30 minutes. So here is Carrie’s Crohn’s story, as told to me.

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December 8, 2012 at 10:38 am 1 comment

Purple Challenge Day 7 Photos!

Today is the final day of Crohn’s & Colitis Awareness Week and the last day of the Purple Challenge.

The sheer number of people who participated in our Purple Challenge is unbelievable and shows how many folks IBD impacts internationally.

That being said, thank you to everyone who participated in the challenge by tweeting and/or Facebooking photos!

However, just because the challenge ends tonight doesn’t mean you should stop wearing purple to raise awareness about Crohn’s Disease and Ulcerative Colitis.

Here are some pictures from Day 7!

I'm rocking purple jeans for Day 7

I’m rocking purple jeans for Day 7

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December 7, 2012 at 10:34 am Leave a comment

Purple Challenge Day 6 Photos!

Day 6 of the Purple Challenge is almost over and again, I’m amazed at all the photos we’ve been getting for the challenge.Here are some of them!

My skirt today

My skirt today

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December 6, 2012 at 7:11 pm Leave a comment

Purple Challenge Day 5 Photos!

Day 5 of the challenge and we still have a whole lot of photos coming in (including a few from last night but I fell asleep to early to put them on the Day 4 post). I am so appreciative of everyone’s participation- it really shows how many people are touched by inflammatory bowel diseases!

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December 5, 2012 at 11:52 am 3 comments

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The Caged Bird Still Sings

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