Posts filed under ‘IBD News’

CCFA Releases Research Progress & Goals

Today, the Crohn’s & Colitis Foundation of America released its “Challenges in IBD Research” report outlining what’s been accomplished in the field of research over the past five years and what they hope to accomplish in the future. The last report was released in 2008 and since then, lots has been accomplished in the field of research.

The previous report detailed findings from 2004-2008, including the identification of genes for IBD; a better understanding of the relationship between the immune system and gut bacteria; the discovery of cells that drive and regulate immune responses; and a better understanding of how the immune system keeps stability in the lining of the gut. All of the below information has been pulled from the study’s Lay Summary.

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April 18, 2013 at 8:48 pm Leave a comment

Attention Tri-State IBD-ers: Great Education Program in CT This Weekend!

CT Patient Education Symposium - to post online

This is going to be a fantastic education event! Speakers include Dr. Jack Chuong (Digestive Disease Associates), Dr. Dinesh Pashankar (Yale Medical Group), Dr. Francisco Sylvester (CT Children’s Medical Center), Dr. Sandra Escalera, Dr. Joel Garsten (Digestive Disease Center of CT), Dr. Harry Schwartz, Dr. Phil Ginsburg (Gastroenterology Center of CT), Dr. Yanni Oikonomou (Yale Medical Group) and Dr. Michelle Smedley (Connecticut GI).

Topics to be covered include IBD in children, nutrition, medical & surgical care for adults, novel therapies, and support groups.

And the best part of it all- it’s free!

Make sure to RSVP and check it out if you are around this weekend in CT.

April 1, 2013 at 3:49 pm Leave a comment

IBD & Migraines: Increased Risk?

Did you know that people with inflammatory bowel disease may be at a higher risk for migraines than those without the diseases?

That’s what a new study from researchers at Columbia University are reporting.

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March 2, 2013 at 7:46 pm 2 comments

Come Friday, Patients Will Begin To Feel Impact of Sequestration

Sequestration is the buzz word lately.

With the $85 billion in spending cuts set to hit the government, and subsequently all Americans, March 1, it’s time to learn how this will really impact health care.

The unfortunate thing is that there are very few real details out there about the sequester, and as we all know, the devil is in the details. All that is available is estimates as to how it will impact federal agencies and the states as a whole. But there’s no doubt that health care in the country will suffer if our leaders don’t figure things out by Friday.

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February 26, 2013 at 9:40 pm Leave a comment

NY Med Features Crohn’s Disease Patient

In its last episode last night, NY Med featured an 18-year-old patient with Crohn’s Disease. The patient, a young boy named Jesse, was diagnosed with Crohn’s when he was five. In the episode, he is extremely malnourished to the point where looking at him, you wouldn’t know he was 18- he looked about 13 or 14 years old.

During the episode, Jesse has a bowel resection in which the surgeon removed diseased portions of his intestines and reconnected the healthy parts. While they were in there, the surgeons discovered that he had 20 strictures! Dan had one and I know how painful living with that was- I cannot imagine what he must have felt like with 20.

The video for the episode isn’t up yet but I will post a link to it when it’s finally online. In the meantime, you can check out the entire episode synopsis here.

I’m just excited that Crohn’s Disease got some time in the limelight on the show!

Did you see the episode? What did you think?

August 23, 2012 at 9:20 pm Leave a comment

Crohn’s in the news

There have been a few really good articles recently about Crohn’s Disease and the struggle people go through on a daily basis with the disease.

It started last week with a great blog post by a college student in Utah about her struggle in the Huffington Post.

Today, another story has come out by a CNN employee about her 30+ year struggle with the ailment. In the story, Debbi Wynn writes,

There is relief as you realize you have a reprieve from the disease but a lingering sense of anxiety as you contemplate the “what if” that hangs just above your head, depriving you of real peace. It’s a daily struggle to keep the fear and uncertainty at bay and enjoy the moments that feel “normal.

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August 7, 2012 at 7:10 pm Leave a comment

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