Archive for November, 2012

The ABC’s of Crohn’s Disease & UC: “F”

I am really doing a bad job at keeping up with this blog. Every time I start to get into a groove with it, something pops up and I get very busy and this suffers. So I apologize to those out there who read my blog and promise that I will make an effort to really post more than once a week.

Today’s post is a continuation of my ABC’s series. Without further ado, I bring you the letter F.

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November 16, 2012 at 1:06 am 2 comments

Ally Bain (of Ally’s Law) Chats with Caring for Crohn’s About Her Journey

Ally Bain is a rock star in the Crohn’s and UC world. We all know her for her work on creating Ally’s Law, or the Restroom Access Act, which allows Crohnies access to employee-only restrooms during a medical emergency. She was even named one of Glamour magazine’s Top 10 College Women last year! Well, aside from working on getting that law passed in several states around the country, Ally is a recent college graduate who is in the process of applying to law school to study civil and disability rights.

Ally recently chatted with me about her Crohn’s journey. Check out her interview below!

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November 7, 2012 at 5:04 pm 2 comments

What Not to Say to an IBD Patient or Caregiver

In the almost six years that I have been with Dan, many stupid things have been said to me about the disease. Usually, I just brush it off because I am not the one living with the disease every day.

This post comes after I read a piece in Health Magazine entitled “11 Things Not to Say to Someone with Ulcerative Colitis.” Crohnies hear the brunt of the dumb things that are said about the disease, but us caregivers definitely hear some also.

Below is a list of some of the things that have been said to me that you really shouldn’t say to an IBD patient or caregiver (or really anyone with a disease). Disclaimer: you may not agree with every one I put on the list. This is just made up of ones that annoy me (and I may become annoyed more than others). What is okay or not okay to ask  or say is totally subjective and varies person to person.

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November 5, 2012 at 7:47 pm Leave a comment

The ABC’s of Crohn’s Disease & UC: “D” and “E”

Over the past week or so, I have spent awhile researching the next entry in this series, D. And what I found is beyond a few obvious ones, there aren’t many things related to Crohn’s and UC that begin with the letter D. Therefore, I am combining two letters together for this entry: D & E. So without further ado, read on!

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November 2, 2012 at 8:03 pm 1 comment

Hurricane (or any storm) prep for IBD

If you’re like me, the past few days have been a haze of bad weather and destruction. Living on the eastern seaboard, in the past year we’ve had three major storms- two hurricanes and one blizzard. Each storm knocked us out of commission for days with no power and damage.

We were lucky- we neither lost power nor had any damage. But others weren’t as lucky. My heart goes out to all those who had their homes wrecked and ravaged by Hurricane Sandy.

That brings me to today’s short post- preparing for a storm with IBD in mind.

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November 1, 2012 at 5:53 pm Leave a comment

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The Caged Bird Still Sings

Striving to be content with the life I have been given, instead of the life I had imagined

Brian Greenberg

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